ProPublica is doing a story and was asking for these on Bluesky at least. Wanted people to share their stories.
A friend of mine was feeling ill, but didn’t go to the hospital because he couldn’t afford it. Once the leukemia started advancing though he only lasted a week.
There are far worse out there, but about a year ago I injured my hand somehow. I couldn’t close my fist, which made it hard for me to work and support my partner as I do a majority of the cooking and chores. I couldn’t make a firm enough grip to use cast iron cookware. I was really concerned about this for a number of obvious reasons, so I went to the doctor.
I looked up an in network doc, call them up, confirm they take my insurance, double check that the kind of care I was looking for was covered. At my appointment they ask to do a physical as well, since I was due for one. During that they asked all the normal questions, the poignant one here being “do you smoke?” I replied “I have one or two cigarettes socially when drinking with some friends, which happens maybe once every other month or less.” This changed the tone of the entire visit.
My concern about my hand was largely disregarded and the doctor began talking to me about smoking cessation and the dangers of tobacco. Gave me pamphlets, tried to ask if I’d consider quitting, asked if I’ve tried alternatives. I tried to turn things back to my hand and she wasn’t interested. After I strongly insisted that was my sole medical interest, she gave me a referral.
I pay my copay up front and leave. I go to the specialist a few days later. He looks at my hand for 45 seconds and gives me a wrist brace and tells me to sleep with it on. I pay my copay and leave. Wouldn’t ya know? That did it! My hand was working again.
I call the specialist to follow up on his care and say it worked well. He told me I need to speak with billing to settle my bill. I’m confused. Wasn’t the copay for that? He says the insurance covered the visit but not the medical device (the wrist brace). So I check with billing and they want four hundred dollars. I’m flabbergasted. I check where they got the product, because surely it couldn’t cost that. I found the identical product, brand and all, on Amazon for $13. I’m livid. I argue with them, they say they can’t do anything.
I call the insurance and they say my policy was clear about specialists and medical devices. Dejected and feeling stupid, I just pay.
About a week later I get a call from the first doc saying I needed to settle up as well. I owe them five hundred dollars!!! How?? They say the bloodwork they did wasn’t covered. I plead saying that’s a normal part of a physical, no? They say yes, but I didn’t come in for a physical, according to the billing, I came in for a smoking cessation meeting!!
I tried for weeks to get the doctor on the phone to rectify this but they wouldn’t speak to me. My insurance company said they didn’t cover bloodwork as part of that and the doctors office wouldn’t change the billing.
I’m sick of doctors, I’m sick of insurance companies. If I get sick, I make chicken soup, drink tea, and scarf OTC drugs. I sprang my ankle fishing earlier this year. Did I go to a doctor? Absolutely not! I can’t afford a $900 bill every time something goes wrong.
I pay $360 a month for this. Thankfully I make enough that this wasn’t so damaging on my life, but I stopped buying as much meat and ate mostly beans for a year and didn’t travel for my vacation. I had been hoping to visit my father across the country that year but we had to put it off. It changed my outlook on medical services drastically and I’ll never be so honest to doctors again.
This shit is why I haven’t been to a doctor since high school.
I think what annoys me so much about doctors is that they charge you afterwards. If you knew what you were doing was gonna cost $500 you wouldn’t have chosen to do it. They know what your insurance is. They know what they charge. But they don’t tell you until afterwards.
I had a similar experience in the last year. They basically try to trick you into paying. They know exactly what they are doing too.
This one time a few years ago I literally went in for a check up (first time all year) to find I had a completely new doctor assigned to me. And I couldn’t even make this shit up if I tried. The new doctor was not in my network, they did not inform me during my visit, and he tried to get me to do shit (upcharge) that fortunately I outright refused the entire time we spoke.
When the bill came they tried to charge me out of network prices, and I basically fought them for six months saying that it was a surprise bill until they finally gave up. I don’t plan on ever going back to that office again in my life.
If we all just stop paying the insurance, and instead just put $50/month towards the exorbitant medical bills, boom, universal healthcare
My husband was diagnosed with ulcerative colitis in his early 40s. There was a medication that kept his symptoms more or less in control.
Then he lost his job. The meds ran out and it turns out they cost thousands of dollars without his work insurance plan. This was just before Obamacare, and there was no way we could afford unsubsidized insurance for him on my salary.
His colitis got exponentially worse, and was treated only spotadically when I could scrape together a few hundred dollars for the doctor visit, where he might be able to get enough free samples of the med or a round of steroids to reduce the gut inflammation.
One night as we were lying in bed winding down to sleep, I heard him drop his magazine on the floor and start what I now know was agonal breathing. I called 911 and did my best with CPR, but his heart had stopped and in all likelihood he was dead before the paramedics arrived. He was 53 years old.
I found out from his death certificate that he had severe ischemic heart disease. It was undiagnosed because he hadn’t had regular medical care for years because of the vicious circle of unmedicated symptoms/inability to work/no insurance.
That’s my horror story. There’s also my 4+year quest to be diagnosed with MS, being told by multiple doctors that if I lost weight I wouldn’t be so fatigued I could barely move, or have vertigo, or fall down for no reason, or whatever symptom I had at the time. But hey, at least that story eventually ended with diagnosis and treatment… as long as I have my job and insurance, anyway.
I’m intersex and have both male and female anatomy. US healthcare “insurance” isn’t coded for people like me. It assumes a sex binary when the facts of reality show otherwise.
Back at my old job, I had full premium health insurance. However, they kept denying each and every claim, denying literally everything. They unofficially recognized my intersex condition and used it against me.
Whenever I filed a claim as female, they’d deny it and claim I was male and thus the claim was incorrectly filled out. When I filed as male, they’d pull the exact same stunt now claiming I’m female and thus the claim was incorrectly filled out. Whatever the claim, large or small, it was always the wrong sex on the paperwork.
It was a "heads I win, tails you lose" situation. I have a better job with the government and with a different insurance company, but they too are starting to pull the same stunt. I hate this country for allowing such corruption to thrive.
This is something I haven’t really thought about. I work in healthcare and I can genuinely tell you I’d have no idea how to handle this, if your meds got sent to my pharmacy there would likely be a huge delay and I guarantee you it would not be anything intentional on our side 😭 of course an insurance company will have dealt with this many more times than a chain pharmacy and should have practices in place for such situations, but I don’t think there’s anything in my system I could do to say someone is both male and female.
I can genuinely tell you I’d have no idea how to handle this
Yeah that’s pretty much the story of my life. Everyone from insurance, to employers, to the military, to legal paperwork, to traveling, and everything else. I was even excommunicated from my church when I was 12 for the “crime” of being intersex.
Not only do I have this issue, my little brother and my uncle on my mom’s side does too.
What insurance company was it? 💜
I used to live in China, where socialized medicine was in theory available for everyone, but in practice most everyone who had a decent job had private insurance from their employer not unlike in the US, which was my situation. It was…fine, but I was a healthy young adult and didn’t have much going on medically. I’ve heard some horror stories from others about the degree of care they received, and had one experience where my doctor simply attributed my migraines to my “unhealthy American lifestyle”, but I never had to worry about coverage.
When I moved back home to Massachusetts a few years later, I didn’t have a job lined up right away, but I did gain immediate coverage through MassHealth (the system the Affordable Care Act was based upon) and it was very cheap. I didn’t have to pay for coverage, but did have a couple copays here and there which weren’t anything crazy.
I started up one job, was laid off after just a couple months when the pandemic happened, and MassHealth was still there to give me some peace of mind. It’s not a perfect system, but it beats running the risk of suffering a health episode that leaves you financially destitute for years and years. I don’t know how well I would have managed elsewhere.
I eventually landed a more stable-long term career and get employer-provided insurance through Tufts. And it’s okay, but I recently had to fight a months-long prolonged battle to get a prior authorization approved for a med I had been taking for years that they just decided out of the blue I didn’t need to take anymore. And it took a lot of back and forth from my doctor to really stress that I needed to stay on this med before they eventually caved and gave me a 1-year approval, but now I’m worried I’ll have to go through this whole song and dance again when that time elapses in a few more months.
I think it’s just a bit ridiculous that the insurance company can simply decide they know my health situation better than myself or my doctor who I’ve been seeing for years now, and out of the blue make life-changing decisions without even having spoken to me or my doctor first.
My childhood friend needed an operation, her family made a commercial for the local TV station trying to raise the money, but she died before they could get enough.
I’ve got cluster headache. Only medication that had any noticeable effect was Prednisone. Not even that expensive of a drug, but more than I could afford out of pocket. Insurance wouldn’t cover it because they considered an oxygen mask to be a more appropriate treatment, even though I’d been using them for months with no improvement, and O2 only works for a small percent of people with cluster headache, anyway.
Couldn’t afford to get the meds. Not legally, at least. A coworker was taking Prednisone for a different condition, and managed to convince his doctor to double his dosage, and I paid him for the difference, until he stopped taking it altogether. Ended up having attacks again, and missed enough work because of them to get fired. Between the pain and losing my job, that was easily one of the lowest points in my life.
I wouldn’t wish our healthcare system on my worst enemies.
If you have a pet, you may be able to convince the vet to prescribe them Prednisone
Hadn’t considered that! Sad that that’s probably the most viable option if I needed to get it again.
My dog has anxiety and is taking Xanax and Prozac (I forget which exactly, and they’re the generic of course) prescribed by a vet and filled at a human pharmacy.
And usually way cheaper too
The worst thing about that are the prices in the US. Not only that the insurance system is shit,you are also getting cheated there.
I actually looked up Prednisone in Germany (third most expensive pharma market in the world): 5mg, 100x, 16 bucks. Basically around that price for all halfway normal doses.
In other words, for 60 bucks you could easily cover a year.
Canadian here. Had an accident and took a ten minute ambulance ride in Minnesota. $1400.
Also Canadian, would drag myself across the border on a broken leg and throw myself on the mercy of the Niagara Falls hospital before I ever got near an American hospital. I’d be bleeding from my head wound and assuring the border guard I had no alcohol or tobacco and did not spend over my dominus.
No joke: My mom burned herself with coffee really bad and we high tailed it back across the border to Sarnia before getting treated.
Also Canadian.
While in Seattle on an H1, needed to go to Northgate for a routine maintenance procedure. (I’m a twin. Guess which procedure)
It’s a well-developed thing, and so i tell the doc, “look. This has been developed for 10 years, it responds well once the pressure’s off, don’t cut me just gimme a local and draw it out with a horse needle.” He agrees.
Next thing I know, “And here we have Mr Guppy, presenting with…” and a dozen kids are looking at a nekkid part of me. And they shoot the local.
And I feel the push of the scalpel cutting. Those motherfucking butchers. And butcher they did.
Had to pay $500 on the way out, and apparently that’s a lucky thing even with my American insurance at the time.
Ultimately I came back to canada because the risk of a car crash ruining me financially for life was too much to bear. Fuck that.
My spouse had their lung collapse. Insurance denied it because we didn’t get advance approval for their lung to collapse.
This is scary, as an European. I had my left lung collapse too. Two years later my right one. After that I had to have surgery on my right lung (Pleural Abrasion) and a few months of physiotherapy after that. I also had a yearly appointment with a Pneumology MD for 5 years to follow the development of the lung until it was all fine.
How much did I pay? You guessed it…zero. Now I wonder how much would that set me back in the US with or without insurance.
I’m glad you’ve recovered! They did say it was more likely for my spouse to have a lung collapse again, which is scary.
Luckily my spouse’s employer has someone whose whole job is to fight with insurance. She got insurance to admit that in an emergency we didn’t need pre-approval which brought our bill down some.
Had something similar, failed to get pre-approval for a CT scan to diagnose a pleural effusion. Yes, I was supposed to wait 24-36h for someone unfamiliar with my case and likely not even a doctor to determine if a diagnostic test was nessasary.
Edit DDD
European visiting the US, so it’s going to be pretty mild.
This was early January, 2021, so I needed a negative covid test before I could start the one month of work I had planned (my reason for being there).
Me: “Noted. I see there’s a clinic across the street from my hotel, I can have it done tomorrow morning.”
Shoreside rep: "Sorry, can’t do that here. It has to be this specific clinic with which we have an agreement.
Me: “How about my travel insurance, won’t they cover it anywhere?”
Rep: “We don’t know that until billing, and then you’d have to expense the copay, which management doesn’t like”That’s when I learned wtf “copay” is. I had loads to do the day after, but I spent most of the day in a car, back and forth, so that I could visit this one specific clinic for a test that took five minutes.
And if Houston city planners weren’t bribed by Big Concrete and Big Car Dealership, I’m sure the ride would have been significantly shorter as well. As a sidenote, I find it pervertedly fascinating that Houston is a city that somehow manages to be located surprisingly far from Houston itself.
Ah. COVID.
When the vaccine came out it was allocated in stages. Healthcare providers and the elderly were prioritized. As they should be. When it was finally available to the general public, the state released a website that helped you find the nearest pharmacy with doses. And it was guaranteed to be free.
I found one local pharmacy in a nearby village and we got our dose. They didn’t ask for a copay, but did write down our insurance info. Two weeks later, we got a bill from United Health because we unknowingly used an out of network pharmacy for our ‘free’ shots.
Minor thing, but it’s just an example of our garbage. I’ve never had a good experience with healthcare in the US. OK - scratch that. The time I needed stitches for a bad cut, the receptionist who was billing me whispered that “If you’re any kind of ‘medical professional,’ you can remove them yourself and avoid another visit.” Shit - I own stuff for sewing. That was good, although slightly painful advice.
Canada was wild, though. I visited a walk-in clinic for an abscess on my leg. No bill. I also visited the ER with chest pain. In both cases I felt like a criminal for leaving without giving them my credit card info.
Staged rollout here as well (I think that was pretty universal). Due to traveling a lot, I asked the people at my local Village clinic (yeah, I live in the middle of nowhere), if it was possible for them to make a note that if they happened to have any leftovers doses in the group before me (such as if someone didn’t want theirs for whatever reason), if I could have it.
I made it clear that I didn’t want to jump the queue ahead of anyone before me, as I’m reasonably healthy, but I could really use being at least first in my group.
And I’m glad I did, because they obliged, and a month later I found myself back in the US, and this time I caught covid. I’m sure the vaccines was what caused it to be extremely mild, bordering asymptomatic.
Come to think of it, I’ve caught covid twice, both times in the US.
Deny. Defend. Depose.
Careful, apparently a lady got charged for suggesting health insurance company might be next.
National headline and all
Also apparently the word manifesto is a bad word on Reddit now
Reddit is undergoing a serious scrab… There won’t be much evidence of the genuine sentiment.
Shills are back doing politics shit.
Although they are getting called out for it for now it seems.
They will keep this up until Unity falls
To be fair, she also added “you people are next” which probably sounded more threatening than just those 3 words alone. Not that I agree with it, but thats how the authorities see it.
State has the burden of proof.
Would a reasonable person feel threatened here?
Her capacity?
We all can see what the government is doing… Do you think they treat every customer service abuse with this zeal?
Arrests have lower threshold of proof than a conviction in court. Which is why the cops got away with doing this.
The requirement of arrest is “probable cause” and her words probably meets that definition.
In court, its “beyond a resonable doubt” which probably wouldn’t be met.
She wont get convicted, they are just arresting her and charging her with crimes to scare her and make an example of her.
DDD
I’m rawdogging life with pretty bad ADHD, depression, anxiety and probably autism because I have always been poor lol
The trifecta with the cherry on top.
On a road trip, got food poisoning so bad that I couldn’t eat for 5 days, barely kept fluids down and was so weak that walking into an appointment, the doctor told me to go to urgent care.
They gave me an IV, did an ultrasound, and gave me some anti-nausea and anti-diarrhea meds, which barely helped. It still took 3 or 4 days before I started feeling better.
Insurance comes back with a 5K bill. They claimed that even though I had my regular prescriptions go through both before and after the trip, the trip claim itself was denied because it was “during a time when I did not have coverage”.
Took several months and phone calls of pointing out the before/after is approved without questions so there’s no way to claim I wasn’t covered during this one week. Every human I spoke to agreed with me, but it still took months.
Haven’t seen a Dr in 20 years.