Sorry, I dont have any advice to offer as I dont know much or anything at all about lupus, but I just want to encourage you to keep strong. Ive read a few of the comments from people who seem more experienced, and I get the impression that its very possible to live a fairly normal life as long as you make a few changes to lifestyle. Just keep strong, and surround yourself with supportive, positive people and youll get through it. 🫂
I changed how i look at communities when i switched to lemmy. Instead of just looking at the part before the @ i look at the whole thing and consider that to be its name.
So instead of the gaming community its gaming@xyz.qr and gaming@abc.de as a whole.
Tl;dr: theyre different separate comminities and the name is for all intents and purposes the entire thing.
I suggest subscribing to all of them for the topics you want and slowly through exposure learning which ones youd like to keep.